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Wednesday, September 22, 2010

Day 28

This one is Ella on her Birthday.....

Ella was so very tired today. She fell asleep in the car on the way home from taking Josh and Morgan to school- that's about 8.15am. I just drove around so she could rest, knowing that if the car stopped- she would wake up. Then she fell asleep again at 1.30pm and 6.00pm. So, what does this mean? Her red cells are probably low, and there is a good chance she will need a transfusion tomorrow....crap, crap and triple crap! So, we will be getting into to clinic early to try to get her done as soon as possible so she can eat. She can't have any food tonight after midnight- until after her procedure tomorrow. I do not know for sure that they have to give her the transfusion first, but I am betting they do, and that is a 3 hour process. Try telling a steroid enraged child they can't eat for hours- not fun for any of us. If it is anything like last time, she will be asking for food every 5 minutes. And when I say asking- I mean yelling. Hot Dogs are one thing she really shouldn't eat, but of course she now craves them like I did Oreo's when I was pregnant. So, her one treat after treatment is a Portillo's hot dog. Last time she kept screaming about that hot dog until we left! It was kinda funny.....
So, if your praying, please pray for her Bone Marrow Aspirate and Spinal to go well, and that her blood/platelet counts are good for tomorrow. Pray that she will be distracted enough to not be focused on her hunger and that with God's Grace we all make it through the day.
Blessings and Love-Katie


  1. Here's to a fast morning and an awesome Portillo's hot dog to follow!!! Simple pleasures I say... she is so strong, enough for all of you sometimes. Hang in there, you are all doing a great job and you have a little trooper there!! xoxo

  2. Prayers and positive thoughts coming your way. And also for you to have extra strength to get through the hard days. You are much more a stronger mother than any of us could even imagine to be. God Bless you for that.

  3. praying for a good day tomorrow!!