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Monday, December 27, 2010

Day 121 Clinic

Meds for Ella's spinal today

Chemo drugs by IV for Ella today
Ella started Delayed Intensification today. This is the toughest part of her treatment. Her counts came back low, so the Dr. had them run a second time. The second time they came back above where she needed so they scheduled her spinal chemo and 2 IV chemo's and drugs for the day. We left around 3pm. Josh came with us today because he wanted to see what it was like. He watched them access her port and flush it. He and Aunt Carrie stayed outside the procedure room during her spinal and he got to play HOURS of his DS, which we normally do not allowed. He enjoyed beating his Aunt at racing games. When we got home he was like "WOW, All day driving and sitting at the hospital ." So, now at least he knows that Ella is not having fun all day while he is at school. We left the house at 8am today and got home at 5pm by the time we picked up her new medications.
Ella and Josh waiting for test results.
Ella fell asleep on the way home from the hospital today. I spent 45 minutes after we got home figuring out her new meds schedule and calling the pharmacy to figure out why we only got partial fills on 2 of her scripts. I am very grateful that we have insurance, but I wish it was simpler sometimes. Ella woke up and asked Josh to play Tea Party with her. They changed clothes and are currently are sipping "tea" in the playroom. He was a really good big brother today.

Ella woke up around 2am for about an hour. She just cries that she is scared, with no reason why. I don't question this much because she has every reason to be scared- I am too. So, I just laid in her bed with her, tried not to fall out and stared at the Christmas Tree in her room.  She has ornaments with pictures from every year since her 1st Christmas on her tree. I could not help but stare at her picture from last year. Her red hair in pig tails with little curls at the ends. Big smile with matching big dimples on each side- so sweet and happy.  I love watching her sleep.
My beautiful girl.
I wish I could put into words how I feel, but it all seems so selfish to me. Nothing I am feeling can possibly compare to what Ella is going through. What right do I  have to cry when she goes from a spinal to having tea? Please pray that she doesn't have a bad reaction to her new meds during the next few days. She has to go back on Thursday for another treatment. This one is 2 shots in both of her thighs and we have to carry around an Epi-pen for a week to make sure she doesn't have a bad reaction to it.

The cool thing about today, is that we got her official end date today- 10/28/12! YEA!!!!!

Thank you all for your prayers and kind words, it really makes a difference.

1 comment:

  1. Thanks for the update Katie! Continuing to pray for all of you. Ella is an amazing little girl! What a great family and terrific brother she has...all lovin' on her! Stay strong & God Bless! :-}